We found out on Friday that the NHS has agreed to fund Daniel's surgery with Dr Paley in the USA. This is great news as it means that Daniel will have his surgery with the best in the world. Not so great that he has to have another surgery, but we have to take the positive!
A gap in Dr Paley's busy schedule has just come up so we are off to Florida on Monday 21st March with pre-operative appointments on the 22nd and surgery on the 23rd. So its been a rush on booking flights, accommodation, car hire, and time off work for Shane.
We've told Daniel that we are going to Florida again and he is really excited. With his last two trips, the surgery has been relatively minor so he has pretty good memories of our trips. We have told him that we are going to see Dr Paley to see if he can fix his hip so he can sit up properly. Daniel seems pretty happy with this idea but doesn't really understand what this involves yet. We also haven't told him about the dreaded fixator yet. We will tell him a bit closer to when we leave. He is a pretty positive kid and he will probably take it in his stride like so many kids facing surgery amazingly do.
Speaking of amazing kids, Ginette and Michael McKenzie who have helped us through our PFFD journey so far appeared on a UK morning TV show talking about Michael's journey with PFFD. Michael had his earlier surgeries with Dr Paley in the USA and they are hoping to return there to have hip and knee surgery.
It has been a while since I posted a video of Daniel. Here is a short video of him at lunch on the weekend.
Posted by Kristen (Daniel's Mum)
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