An Update on our Brave Little Superhero!

It has been four months since I have updated the blog, four months since Daniel's fixator has come off and four months since we moved to Singapore so I thought it was time I spend some time updating you all on our brave little superhero.

After his fixator was removed, Daniel continued with his daily physiotherapy sessions and five sets of stretches throughout the day for the first two months.  Gradually, we have been able to reduce this down and now we are happy to say that we only have hydrotherapy once a week, a land therapy session every two weeks, one session of stretches and strengthening at home and an x-ray once every 3 months!  Daniel has also started swimming lessons which he is loving.  It is great exercise for him and a great confidence booster.

Daniel also has a new prosthesis with a foot that provides an energy return. At the moment, the prosthesis is a horrible looking skin color. I am not sure why they use this color because its not like no one will notice it.  Daniel wants it to be black and red, the same colors as his favourite Aussie Rules footy team, the Bombers, so Mummy has been searching Singapore for black and red fabric which they can use to laminate it.  No luck so far, so Daddy is going to see if he can find some in Mumbai, India where he is working at the moment.  Never thought it would be so hard to find!

Now that our time is not taken up with physiotherapy and stretches, we are able to enjoy life outside Daniel's hip.  Not just the time we have during the week for swimming, going to the playground, having playdates with new friends, constantly wrestling with little bro Max (with army sergeant Mummy yelling in the background) but also on the weekend we have been able to enjoy going to the zoo and to the  beach without having to worry about how we are going to fit in Daniel's stretches.  I remember once when Shane took Daniel into the disabled toilet at the shopping centre to do his stretches and an old man was hovering outside not sure what was going on in there.  It seems strange that we had to do this but if we weren't really strict about it, missing one would easily lead to missing three and we didn't want Daniel to have to go through all this for nothing.  I have also had time to see my friends, something I wasn't able to fit in around all the stretches.  Today Daniel had his first full day at nursery like the other kids in his class, instead of the usual half day so he could fit in his physiotherapy.  He was so excited that he had trouble getting to sleep last night!

Daniel also recently went on a trip to Brisbane with his Dad for his Auntie Kim's birthday.  He was so excited and had an amazing time with all his Aussie cousins!  I asked his cousin if Daniel ever stopped talking and he said when he was sleeping and when he was drinking his juice.  Daniel really loves to talk!

Trip to Singapore Zoo

Swimming Lesson at our condo

Trips to the local beach

Scootering around the condo

Wrestling with Max

Daddy and Daniel trip to Brisbane

Hanging out with Grandpop and
the cousins at Auntie Kim' s party

Stop talking Dan!

We have been able to enjoy just having fun with Daniel rather than constantly nagging, begging and bribing him to do his exercises. We went through a lot of reward charts but even these didn't work sometimes. Thankfully, it is not Max we were trying to bribe because he has a very "whatever!" attitude is not driven at all by reward charts. At the end of each reward chart, Daniel chose a reward which nine times out of ten was an Angry Bird (from the Angry Bird iPad game). Daniel's physiotherapist even got into the Angry Bird bribery technique giving Daniel one if he was good for the week. His physiotherapist also gave him one with a ribbon tied around it for his birthday and the whole physiotherapy department signed a birthday card for Daniel which was really sweet. If the physiotherapy department awarded frequent flyer points, Daniel would be gold member.

One of Daniel's completed reward charts

Daniel's Angry Bird collection

We not celebrating and popping the champagne cork yet, because we haven't had our follow up with Dr Paley, but it looks like Daniel's hip has not refused and his hop motion is pretty good. It is really difficult to tell what motion he has because he was living without movement in his hip for so long so his body compensated. It is hard to know how much is hip movement and how much is pelvic and back movement. When Daniel had the fixator on, we could tell what hip motion we were getting but after it came off it was very difficult to know, even for the trained physiotherapist. We have been having monthly x-rays sent to Dr Paley and he is happy with the results but has reiterated that it the motion in his hip that is the most important factor. I just wish we could pop in to see Dr Paley.  The physiotherapists are also working on strengthening the muscles in his hip and leg that he hasn't used for so long which will help improve his gait so he can walk further without getting so tired.

We have a follow up appointment with Dr Paley in April next year. We are going to meet him at a conference in Helsinki, Finland which is a lot closer to Singapore than West Palm Beach. I am thinking we are going to be visiting a variety of cities over the course of Daniel's treatment. Our choices this year were South Africa, Israel, Turkey or Germany. We chose Finland because we can get a direct flight and Daniel's Dad's family are from Finland so we can visit some relatives at the same time!

Since my last update, Daniel has also celebrated his fourth birthday. I compare my first four years to Daniel's first four years and am amazed by what he has been through. That list includes three rides in ambulances for febrile convulsions (one on the Eurostar platform in London, one at nursery, and one at a cottage in the middle of nowhere where the tractor had to come with us in case the ambulance got bogged); five surgeries including two over 10 hours with a night in ICU; two external fixators on for a full year of his life; daily physiotherapy sessions and painful stretches; multiple trips to Florida USA to see a doctor; an MRI and a CAT scan under general anesthetic and living in London and Singapore.  Yep, nothing like my first four years!!

The most difficult aspect of Daniel's latest surgery and recovery has been learning to cope with inflicting significant pain on my little boy during his stretches. At the beginning, I would feel physically ill. But after time, I was able to push those feelings into background which is also difficult to deal with because then I felt like an uncaring, unfeeling Mother. These feelings are particularly strong when I see other people get quite upset by what Daniel has to go through, like seeing the tears well up in Daniel's physiotherapist's eyes in London. I remember at the beginning of the journey watching the parents sitting outside Dr Paley's physical therapy rooms while their kids were screaming out in pain from the stretches while they read their magazines or played around on their laptops seeming unaffected by what was going with their kids. I know it is a coping mechanism and those feelings are still there in the background manifesting themselves into a pretty high and constant level of stress.

There must be parents all over the world that go through similar experiences but not a lot is spoken about it, well not that I have experienced. I try to think if it was me, would I have wanted my parents to make me do this when I was four so I could have a hip that works for the rest of my life? I think I would be angry with them if they hadn't and that is what keeps me going on this journey.

I am thankful for the emails I get from Caroline at Dr Paley's office which really help. Thanks Caroline, you are so thoughtful and write so beautifully!

I just wanted to drop you a little quick note to let you know how much I admire your strength and gentle tough love with Daniel. Having to watch your innocent young child go from one trying situation to the next is nothing short of heart wrenching. 

All of these children are so brave and strong. Daniel and his journey has touched my heart in a very special way. Your story has given hope to so many. I’m sure it can be tough at home because others, with the best of intentions, must have a hard time relating to what you’re going through. It’s hard for someone who hasn’t experienced this level of complex surgery, and even more complex recovery to truly understand.

As I reflect back on my childhood and all of the surgeries I had, I recognize the emotional burden it must of been on my Mom. Yet it was her strength that forged me ahead. Dads are certainly integral in this process, but there’s something about a mother’s love that promotes healing. One day Daniel will look back on all of this and like me, be in awe of our mother’s unceasing love.

Daniel also has his own coping mechanisms. One of these is his imaginary friend/sister, Vergonna (not sure of the spelling because Daniel made it up). She is the same age as Daniel and also has a fixator. She is not around all the time but we seem to hear about her a lot when he is has a fixator on. I am not an expert in child psychology but he seems to talk about her in a way to express his own feelings. Another thing Daniel would do was to ask us or the physio to do more of the really painful stretch. He would cry out in pain but still want the physio to keep going. This seems like a really strange thing to do given how much it hurt him but I think it was a way for him to feel some control over his situation.

We are not expecting anymore surgeries (touch wood!) until Daniel's first lengthening when he is six or seven years old. I am envious of other PFFD families who when they experience their first external fixator it will be for a lengthening at age 4 where they will achieve 8 cms of growth and their second fixator will bring it to 16cm of growth. It is a long, hard road but we will get there in the end. We have a brilliant surgeon navigating and the bravest boy I know at the wheel.

Posted By Kristen (Daniel's Mum)


P.S - For PFFD parents, we have posted a Our Guide to Pin Site Cleaning on the blog if it helps at all. See the menu to the top right hand side of the blog.

Goodbye Fixator Number 2!

Daniel had his second fixator removed yesterday after 12 weeks.  Daniel had been getting constant pin site infections and had been on and off antibiotics for quite a while.  On Saturday we had our first trip to Accident and Emergency in Singapore with another pin site infection.  The doctor took an x-ray which we sent to Dr Paley on Tuesday.  He saw that the actual pins were quite loose in the bone and there was space around the pin which was causing the pin site infections.  "Fixator pins loose. that’s why he is having infections. Ready for removal". Ready for Removal?  Shane, Daniel and I were literally jumping for joy reading these words!

I emailed Daniel's new consultant at KK Women and Children's Hospital, Mr Arjandes on Tuesday night.  He replied that night and rang us Wednesday morning to say he could do it on Thursday.  I rang the insurance company and all the paperwork was done by Wednesday night.  A dream compared to the long winded and frustrating funding application process we had to go through last time Daniel's fixator was removed.  It was also great not having to organise flights to the US, worrying the whole time that Daniel would get a cold (which he always has done!) and we would be on the plane back.

We are loving KK Women and Children's Hospital so far.  The staff are lovely and it is SO organised.  We get text messages reminding us of appointments and while sitting in the waiting room telling us how many people there are ahead of us.

We had to be at the hospital at 7am.  Daniel's spirits were pretty good.  Daniel managed to get carpet burn on his nose in the admissions area while running around and diving on the floor!  He started to get scared once the pre-op checks started and Shane got dressed in his operating theatre wear.  He remembers what happened last time so I don't blame him.  We managed to bribe him with the promise of a chocolate bar after the surgery to take his pre-med this time without spitting it out (it tastes disgusting - business idea - design a pre-med that kids actually like!).  He was very happy when he went in, lolling about and laughing at iPhone videos of Max walking (see below).

The surgery was over really quickly and we were in recovery with Daniel in about an hour.  It all went smoothly.  Daniel's post surgery reaction in recovery - not so much!  He had a tantrum which lasted about 40 minutes yelling out, "I want my fixator back on".  He did this last time his fixator was removed and except for the big 10 hour surgeries where he has no energy left and he is drugged to the eyeballs, he usually has a big tantrum that subsides once he has something to eat.  Those that know Daniel will know that you can't deprive Daniel from food for too long and the nil by mouth requirement is not really his thing.

After recovery, we went back to the ward where we stayed until 5pm once the staff were happy he was ready to go home.  With no pin site cleaning tonight and no exercises until we start again on Monday, we didn't quite know what to do with ourselves.  We are looking forward to our first fixator free weekend!

From Monday, Daniel has more agressive physiotherapy ahead of him to make sure that his hip does not refuse.  The fixator was in place to distract or separate the femur from his hip so that the fusion did not reoccur.  Without the fixator in place anymore, we have to hope that with normal daily motion and physiotherapy, it will not refuse.  We recall Dr Paley saying that if it has not refused six weeks post removal, we should be all okay.

Waiting to go into operating theatre.  Note the screwdriver Shane is holding.
We brought our own screwdriver (from Maplin on Edgware Road, London)
for the consultant to use to take the fixator off!

An ice-cream treat on our way home.  I had to go out and
buy some shorts last night that don't have a hole for the fixator!

We got to bring the fixator home (and our screwdriver).
Note the long pins that went into Daniel's bone (ouch!) .
The kids have had fun playing with all the parts.

Posted By Kristen (Daniel's Mum)

Farewell Lovely London!

For those who don't know our big news, after 7 years of living in London, United Kingdom, our family has moved to Singapore!

This blog post is well overdue since we have been in Singapore for two weeks now but I wanted to dedicate a blog post to London and our London friends who have been so supportive and who we will miss so very much.

For those who don't know, Shane and I (Daniel's parents) are from Australia (yes, another country to add into the mix!).  We moved to London seven years ago to experience the other side of the world, earn some pounds (which doesn't make so much sense now!) and to travel around Europe.  We put all our things into storage with the intent we would stay in the UK for about a year or two.  Well, seven years later we were still in London and considered it our home.  We had a mortgage and two kids.

The opportunity came up for Shane to transfer with his work to Singapore which means we would be a lot closer to our family in Australia.  It was not the best timing for us, trying to fit in organising an international move (including selling our beloved London flat) with Daniel's constant physiotherapy and hospital visits but that's the way these things work!  We actually finished a physio session and raced back to our flat in time for the car to pick us up to take us to the airport!

We are going to miss London dearly. Shane and I have moved around a lot and 7 years in one city is a major feat for us which shows how much we loved our time in London.  But most of all we will miss our friends who have been so supportive since Daniel was born.  I don't know how we would have survived the last four years without you all! 

From Daniel's perspective, I want to thank the following people who have made a significant impact on Daniel's life. 

• Constance ("Coco") - Daniel's girlfriend who he met when he was four weeks old.
• Auntie Fiona - Daniel's best grown up friend and Auntie.
• Des, Suzie and Vivienne at Micky Star Childrens' Centre  - Three amazing women who ran our local childrens' centre.
• Lauren at Micky Star Nursery - Daniel's key worker at his nursery who was there from his first major surgery. 
• Andrea, Jenny and Jeanne - Daniel's physiotherapists who only knew him for a couple of months but helped him through a pretty significant event in his life.

I am finding it impossible to come up with words that express our gratitude and describe the positive impact you have had on Daniel, not only as a little boy, but as a little boy that has had to go through some pretty tough times.  Thank you! 

Goodbye London, we will miss you! xx

Daniel ("Danny") and Constance ("Coco") as babies

Danny and Coco with Lauren on Daniel's last day at Micky Star

Daniel and Andrea (Physio) - "Can my physios come to Singapore, Mummy?"

Posted By Kristen (Daniel's Mum)

5 Weeks Down...

We are really counting down the weeks in the fixator this time!  It has been a couple of tough weeks but we are crossing off the days.  Last week, Daniel had a pin site infection.  His leg was swollen, the pin site was oozing yellow and green fluid (sorry, too much information?) and he was really tired and generally not a happy little boy.  The difficult thing is that we had to keep up his painful exercises every couple of hours, it was heart-breaking. We dosed him up with strong pain killers and valium to get him through his physio sessions.

This weekend, the pin site infection was a lot better but for some reason, he was finding the exercises really painful.  His legs would shake and he would cry out with even the smallest movement.  We emailed Dr Paley, who asked us to get an x-ray.  Our local hospital is great and we just turn up at Accident and Emergency and they give us a copy of the x-ray on CD so we can email it to Dr Paley.  Dr Paley's response was, "It looks great".  A huge relief!  We were both really stressed that it his hip had started to re-fuse again.  He seems a lot better today and was tolerating the exercises really well.  One of the difficult things with a 3 year old is trying to understand why it is hurting and how much of it is related to anxiety.

Daniel's latest x-ray that looks great!

Dr Paley has been great through all this.  I don't know too many consultants, or world leading at that, who respond to our emails so quickly over the weekend and Easter holidays.  When Daniel had the pin-site infection, Dr Paley responded to our email in less than an hour.  Shane was able to speak to him on the phone from Accident and Emergency and Daniel was on the right antibiotics that night.

Daniel has a great team of physiotherapists (thank you Andrea, Jeanne, Belinda, Anna, Jenny and Rachel) at the Portland Hospital in London.  Daniel has physiotherapy five days a week for an hour.  The first 45 minutes involve two physios playing games with him (what 3 year old wouldn't lap that up?) and the last 15 minutes involve the dreaded stretches.  Daniel amazes us though because even though every session ends in tears, it is all forgotten at the next session. 

Physio session with Emily
(Dr Paley's physiotherapist)

So a typical day in the life of the Rigby's at the moment:

7:00 Breakfast and Medication (need to eat to be able to have the medication which has not been easy because Daniel has not had the best appetite).

7:30 Ten minutes of stretches with Daddy (this involves moving his fixator at the hinge to get his hip to 90 degrees.  We do 3 big stretches to 90 degrees and about 10 minutes of small movements).

8:00 Daddy takes Daniel up to nursery

10:00 Mummy visits nursery to do ten minutes of stretches in the staff room.

13:00 Mummy picks Daniel up from nursery but before we leave we do ten minutes of stretches.

15:00 Ten minutes of stretches at home before we leave for physio session

16:00 Physio session at Portland Hospital

18:00 Dinner and Medication

19:00 Pin site cleaning with Daddy

19:30 Ten minutes of stretches with Daddy

20:00 Bedtime

Hip in straight position.  Daniel has to have a
bar bolted in to keep his hip straight
so it doesn't get stuck in the
wrong position.

During exercises we take the bar off and bend
the bottom section upwards as much as we can.

Some non-medical related snaps of the boys enjoying Easter!  

Max and his Easter Eggs! 

Daniel and his Easter Eggs!

Posted By Kristen (Daniel's Mum)

Daniel's Hip Surgery

Daniel had his surgery on Wednesday, 23rd March.  What we thought would be a 3 hour surgery turned into a epic 9 hour surgery!  Daniel's hip was very fused and it turned out to be a very complicated procedure to regain motion.  The great news is though, that Dr Paley was able to regain motion to 90 degrees.

Daniel recovered well from the general anesthetic, but was kept in the paediatric intensive care unit (PICU) for a night because he had been asleep for so long.  He did not have any breathing problems this time which was a huge relief, especially since he had a cough before the surgery.  He also kept his epidural in this time which made a huge difference with his pain.  He was able to sleep really well through the night (until the 5am blood test wake up call!) because he was virtually pain free. 

Daniel's spirits were up and down during his hospital stay.  Sometimes he said I was his best friend.  Sometimes he said I was not his best friend anymore and was sent out of the hospital room. I spent quite a bit of time in the hallway! He did tell me once that he would buy me a toy because I was so brave.  Ummm...I think that would be you Danny!  He was also stubbornly independent and wouldn't let me or the nurses help him move to a more comfortable position. He would want to do it which must have been difficult with no feeling in your lower half and you have 5 cords attached to you (epidural, surgical drain, catheter, heart rate/oxygen monitor and IV)!

Daniel stayed in hospital for four nights.  I stayed with him and Shane stayed with Max back at the hotel.  I think Daddy and Max had some really good bonding time!  We got home yesterday and I crashed quite early missing dinner and sleeping in my clothes until the next morning!  I think the lack of sleep had caught up on me.

Daniel has a fixator with six pins, the same number as last time.  This one is a lot bigger though so clothing is more of an issue.  There is no hiding this one under clothes.  He has to have it on for 3 months.

The fixator has a hinge which allows him to move his hip joint.  There is a removable bar which he wears most of the time to keep his hip straight but we take it off when he does his exercises.  To prevent the hip from fusing again, Daniel has exercise by moving his hip from 0 to 90 degrees for 15 minutes at a time for at least 6 times a day, not an easy task when Daniel cries in pain and begs us to stop . We started therapy with Dr Paley's physical therapist today and we have therapy every day until we go back.  He will have to continue this when we get back to London.    The therapy is quite painful for Daniel at the moment and he will need to take a pain killer before therapy and also valium to help with muscle spasms.  He is also taking daily anti-inflammatory to prevent bone formation which would refuse his hip. 

In addition to the therapy, we also have daily pin site cleaning.  From our experiences last time, we know the pin site cleaning gets easier.  Our physical therapist has assured us that the physical therapy will get easier too.  It is so hard putting him through this and I question myself daily whether we are doing the right thing.  Daniel has been so angry this time which not in his nature at all. I try to focus on the outcome and just get through each day, believing that it will get better and that 3 months will fly by and become a distant memory.  We just hope that his hip does not refuse and all this is worth it.  It is hard staying strong everyday and sometimes it is too much and I have to go and have a bit of a cry.  Tough love is tough.

Thank you to everyone who sent us messages of support during Daniel's surgery. It can feel a bit lonely here away from our family and friends and those messages of support really help. Thank you!

Pre-op room before surgery

Where we wait while Daniel is in surgery.
We are the only ones left
Everyone else is long gone and the
air-conditioning has been turned off.

Daniel in PICU

On the Children's ward with
an ice-cream to cheer him up.

First trip out of the hospital bed
to the Children's ward playroom

Superhip T-shirt (thanks Tredwell family!).
Now covered in blood, food and spat out medicine.
Not sure it will recover!

We need move the bottom bar from
0 to 90 degrees. It is almost there in
this picture.

 Not to forget our little Max who kept us laughing
and made sure the shopping was done!

Posted by Kristen (Daniel's Mum)

Funding granted. Surgery date booked. Florida, here we come again!

We found out on Friday that the NHS has agreed to fund Daniel's surgery with Dr Paley in the USA.  This is great news as it means that Daniel will have his surgery with the best in the world.  Not so great that he has to have another surgery, but we have to take the positive!

A gap in Dr Paley's busy schedule has just come up so we are off to Florida on Monday 21st March with pre-operative appointments on the 22nd and surgery on the 23rd. So its been a rush on booking flights, accommodation, car hire, and time off work for Shane.

We've told Daniel that we are going to Florida again and he is really excited. With his last two trips, the surgery has been relatively minor so he has pretty good memories of our trips.  We have told him that we are going to see Dr Paley to see if he can fix his hip so he can sit up properly.  Daniel seems pretty happy with this idea but doesn't really understand what this involves yet.  We also haven't told him about the dreaded fixator yet. We will tell him a bit closer to when we leave.  He is a pretty positive kid and he will probably take it in his stride like so many kids facing surgery amazingly do.

Speaking of amazing kids, Ginette and Michael McKenzie who have helped us through our PFFD journey so far appeared on a UK morning TV show talking about Michael's journey with PFFD.  Michael had his earlier surgeries with Dr Paley in the USA and they are hoping to return there to have hip and knee surgery.



It has been a while since I posted a video of Daniel.  Here is a short video of him at lunch on the weekend.

Posted by Kristen (Daniel's Mum)
P.S - I have set up a new subscription update service that will solve my spam issues.  If you were subscribed before, you will have re-subscribe by entering your email address above.

A New Year Update...another surgery for 2011

As our family was enjoying a long overdue holiday to Australia, we were coming to terms with Daniel facing another major hip surgery and 3 to 4 months in an external fixator.

Daniel had a CT scan under general anaesthetic in November (our 5th general of 2010!). Dr Paley, Daniel's surgeon in the US, reviewed the results and thinks that Daniel's hip has fused. The good news is that the fused section is probably cartilage, which means it can be removed and may not grow back like bone would which would give him limited mobility. However, it means another surgery and another fixator.

So begins the funding process again for the fourth time. This is a stressful process for Shane and I but the worst thing is thinking of Daniel in a fixator again. He coped with amazingly last time but the impact was really evident when we saw how much more confidence he had after he had the fixator removed. Daniel also loves his daily bath now, something he can't do in his fixator. No trips to the beach because sand is not friendly to pin sites. No wrestling with his friends because of the fear of knocking his friends with the fixator or hurting a pin site. I hope has the confidence to keep up his scootering he loves so much. I hope he has the confidence to play with the other children at nursery and not withdraw into himself like he did last time. Oh, and the dreaded daily pin site cleaning...

It is difficult to put him through this all again but we trust in Dr Paley's vision and if 3 months of wearing a fixator is what it takes for a lifetime of having a normal working hip then it is well worth it. Our 12 year old PFFD friend, Michael, said he would have jumped at the chance of having his hip unfused when he was younger. Those words give me more confidence in our decision to go ahead than anything. Thanks Michael and Ginette!

I have no idea when to tell him that he has to have the fixator on again. There is no point telling him early so he worries but then I don't want him to not trust us with telling him what is going on.

Anyway, I have to do what a 3 year old does and not worry about the future and take each day as it comes. We all got through it once, and we can do it again. And hopefully, it will mean an even better outcome for Daniel for the future.

We are not sure of the surgery date yet. Dr Paley met with our UK consultant at the end of January at a conference in the UK. We are hoping to have all the paperwork together and have the application submitted for the March 8th NHS panel meeting. If they approve it then, we can organise book the surgery and travel arrangements straight away. We will keep you posted...

Since we last updated you, Daniel has a new prosthetic leg. When we were in Florida last time, we met with the prosthetist that Dr Paley uses and he gave us some pictures of a prosthetic design which has a hinge at the ankle. We showed the designs to the NHS prosthetist who was able to replicate it. This new prosthetic gives Daniel a lot more movement in his ankle and should build up his calf muscle.


On the bright side, Daniel is loving life in London. Every morning he is full of energy and smiles as he boards his little blue scooter wearing his Fireman Sam helmet and rides off to nursery. He loves going to nursery and socialising with all his friends. His hip and leg does not seem to hold him back. Occasionally he says to me, "Mummy, I have one long leg and one short leg. I'm special". His little brother Max looks up to him and wants to copy everything Daniel does including having turns of wearing the prosthetic!

Here are some recent photos of Daniel enjoying the Christmas snow in the UK and the sunshine in Australia.













Posted By Kristen (Daniel's Mum)

P.S - Apologies to anyone who received a spam email from me earlier this month. It was not me! I have closed that email account so if you receive anything else from that account, please report it as spam.