Daniel was born in 2007. He was born with a condition called Proximal Femoral Focal Deficiency or PFFD for short. Basically, his right hip and femur did not develop properly which means that his right leg is significantly shorter than his left leg. This blog is for Daniel's family and friends to follow his progress and help other families who have a child with PFFD.
What a wonderful sight to wake up to on the other side of the world this morning! What fun we are going to have going for walks with you next time we see you Dan.
Congrats to Daniel!! This was so exciting to see yesterday as I happened to be reading Daniel's blog when you loaded the video.
Kristen and Shane - I sent an email to your rigbydaniel@gmail.com account. We are adopting a boy with pffd and just wanted to ask you a couple of questions. Your reply to our email would be greatly appreciated.
This blog is wonderful - God bless you for creating it and sharing Daniel's story.
Hi! My name is Sophie and my six week old brother James has been born with PFFD on the left leg and when we first found out about the possibility of amputation, I was devastated. I couldn't imagine what it would be like for him to walk when he was older but now that I've seen the clips of Daniel, I can! So, thank you SO much for creating this blog spot and I'm going to show my two other brothers the clips to make them feel better as well. We often go down to Hyde Park on a Sunday afternoon for a walk... is there any chance that we can meet you there? My dad's mobile number is 07850 642 551 (I have asked my mum's permission for this!)
First and foremost- Way to go daniel!!!!!! We love to see his success!!!!!! This past Feb we met with Dr Paley about our daugher Emily. I didnt know if you had spoken with him and/or if you had decided wether you were going to go with his lengthening plan BUT I just want you to have some info that he had mentioned to us about prosthetics. If you wanted to go with the prosthesis instead of a shoe lift b/c of a large discrepancy (as I already know you have done) he said to not point the toe down. keep the foot at a 90 degree angle. I guess it can create problems for the foot and ankle?? I have no idea what your doctor has advised for Daniel but i would want someone to tell me any and everything that could be useful. Sincerely, Kate Tredwell (ktjean3@hotmail.com)
It was lovely to see Daniel walking...........I can imagine how happy you must be as when my daughter who too has PFFD started walking I too was overjoyed. God bless him....
12 comments :
Great to see, there'll be no stopping him now!
Wicked! That is the best thing I have ever seen. May have to stop babysitting Daniel soon, I won't be able to keep up with him!
Daniel..... You are a legend.
What a wonderful sight to wake up to on the other side of the world this morning! What fun we are going to have going for walks with you next time we see you Dan.
love Gran and Grandpa
Great stuff Daniel! This is fantastic. Can't wait to see you in action next time I see you. Love Jemma.
Congrats to Daniel!! This was so exciting to see yesterday as I happened to be reading Daniel's blog when you loaded the video.
Kristen and Shane - I sent an email to your rigbydaniel@gmail.com account. We are adopting a boy with pffd and just wanted to ask you a couple of questions. Your reply to our email would be greatly appreciated.
This blog is wonderful - God bless you for creating it and sharing Daniel's story.
I love it! Go, Daniel! Go!
That's so great to see. Good work Daniel.
We are so thrilled to see Daniel walking so confidently and enjoying his music.
Hope he is having fun in the snow
Hi! My name is Sophie and my six week old brother James has been born with PFFD on the left leg and when we first found out about the possibility of amputation, I was devastated. I couldn't imagine what it would be like for him to walk when he was older but now that I've seen the clips of Daniel, I can! So, thank you SO much for creating this blog spot and I'm going to show my two other brothers the clips to make them feel better as well. We often go down to Hyde Park on a Sunday afternoon for a walk... is there any chance that we can meet you there? My dad's mobile number is 07850 642 551 (I have asked my mum's permission for this!)
Best Wishes
from Sophie (Aged 11)
First and foremost- Way to go daniel!!!!!! We love to see his success!!!!!! This past Feb we met with Dr Paley about our daugher Emily. I didnt know if you had spoken with him and/or if you had decided wether you were going to go with his lengthening plan BUT I just want you to have some info that he had mentioned to us about prosthetics. If you wanted to go with the prosthesis instead of a shoe lift b/c of a large discrepancy (as I already know you have done) he said to not point the toe down. keep the foot at a 90 degree angle. I guess it can create problems for the foot and ankle?? I have no idea what your doctor has advised for Daniel but i would want someone to tell me any and everything that could be useful.
Sincerely,
Kate Tredwell
(ktjean3@hotmail.com)
It was lovely to see Daniel walking...........I can imagine how happy you must be as when my daughter who too has PFFD started walking I too was overjoyed. God bless him....
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