Daniel was born in 2007. He was born with a condition called Proximal Femoral Focal Deficiency or PFFD for short. Basically, his right hip and femur did not develop properly which means that his right leg is significantly shorter than his left leg. This blog is for Daniel's family and friends to follow his progress and help other families who have a child with PFFD.
Wednesday, 30 July 2008
Favourite Story Book and Raisins
Today we visited the Limb Fitting Centre at the Royal National Orthopaedic Hospital in London so a plaster cast could be taken of Daniel's leg in order to build his first prosthetic extension. This was very exciting because it means that Daniel will be able to start walking soon. He is already compensating without an prosthetic by standing up on his toes on his right foot and bending his left leg slightly. But a prosthetic extension will really help him.
After our eventful shoe shopping trip (see post below), Shane and I were expecting a fight on our hands to get Daniel to sit still long enough to take the plaster cast. We armed ourselves with several tools of distraction. A combination of his favourite story book, "Where is Maisy?" and a box of raisins ensured that the technician, Simon, was successful.
Provided Daniel's miniature plaster cast does not get lost amongst the big adult sized casts, we should have his prosthetic extension in the next week or so!
Posted By Kristen (Daniel's Mum)
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1 comment :
Hi,
You and your family are an absolute inspiration. We have just found out via scan that our little one has a short femur. I'm just searching for information at the moment. Are you from the UK? If so who did you see here? How did Daniel's prosthetic,mwhich you talk about above work. Was it an extension of his foot?
Thank you and best wishes to you all.
Laura
UK
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